Ketogenic Diet
© Andy Baker/Caters News Agency
Fields’ mom said the toddler now shouts for the dog and says bigger words like “dinosaur.”
A toddler with a rare condition has finally spoken her first words after eating four tubs of Cream Cheese a week.

Little Fields Taylor, from Melton Mowbray in Leicestershire, suffers from a rare genetic disorder which affects her ability to speak.

But miraculously, after starting a new diet just three months ago, which includes almost a kilo of Philadelphia a week, the adorable three year old has finally spoken her first words.

Delighted Mum, Stevie, 34, said: "The first time I heard Fields say Mum it was just wonderful.

"I didn't really believe that something so simple as changing her diet could make such a big different.

"The amount of Philadelphia she goes through is a bit mad but the effect it's had is amazing.

"It's just fabulous to know that she does have a voice inside her and we can finally communicate."

The toddler has been diagnosed with an extremely rare condition called Glut1 Deficiency - it means her brain is starved of energy because her body cannot transport enough glucose.

There is no cure for Glut1, which affects just 25 people in the UK, but children can be helped with a special diet called the Ketogenic Diet.

Her new diet is high in fat, and forces her brain to use this as its energy source - rather than glucose.

Stevie said: "At first I was pretty dubious about the diet - I didn't see how food could make such a big difference.

"But within weeks you could see it working, she was more alert and her personality seemed to come out a bit more.

"Then, one morning I was in the kitchen and all of a sudden I heard this little voice shout mum.

"I dropped what I was doing and ran into the direction of Fields and just couldn't believe what I was hearing.

"There's been times that I never thought I'd hear her speak. I was just over the moon.

"Now she's started shouting for the dog and saying bigger words - she said the word dinosaur the other day - I nearly cried."

Fields Taylor
© Caters News Agency
Fields Taylor eats four tubs of cream cheese a week as part of a high-fat diet that helps her rare condition. "Philadelphia really has been our saving grace — she just loves the stuff,” said mom Stevie.
The Ketogenic Diet is high in fat and very low in carbohydrates. Field's must also drink 50ml of a special oil four times a day to boost her fat intake.

Stevie said: "Sweets, cakes and fizzy drinks are out, but anything really high in fat is great for her.

"It was hard to get used to at first - I'd go shopping and start buying loads of butter, cheese, and oil - things that you think are unhealthy.

"Philadelphia really has been our saving grace - she just loves the stuff. She'll pile it up on crackers and it gives her loads of energy.

"I do get funny looks when I give her a tiny piece of toast with layers and layers of butter on but the diet has really worked wonders for her.

"It doesn't affect her weight either as she uses up every bit of fat she eats, she doesn't store any of it."

Stevie, and husband David, first noticed something may be wrong with their daughter when she was just 15 weeks old.

Stevie said: I'd had a normal pregnancy and normal birth but Fields got to 15 weeks old and she started with a twitch in her wrist.

"I went to the GP who said she would book us an appointment at the hospital.

"I was just waiting in the waiting room to find out when that appointment would be and all of a sudden she had a seizure.

"I was petrified. Your worst thoughts go through your mind. She just went really vacant, like she was going into another world."

Fields was rushed to hospital, where she had another seizure, and further tests were carried out.

After a week in hospital she was diagnosed with epilepsy.

"When they told us she had epilepsy we accepted it and tried to get on with it.

"But then I started noticing that other children Fields' age were doing more advanced things than she was.

"So we told the hospital and last March she had some genetic tests done.

"I didn't really think anything of it, and when we went back to the hospital in January this year for an appointment I just thought it was a routine check up.

"I was gob smacked when they told us that there was deletion in one of her chromosomes, and that she had Glut1.

"I've never heard of it before."

The only way to treat the condition is by starting the Ketogenic Diet which Fields was put on in April.

Her parents are now hoping that, thanks to the diet, her condition will improve even further.

Stevie said: "We went to a Glut1 conference in America last week and there were children there that were walking.

"It's a huge goal for Fields to reach, but she's progressed so far in such a short time.

"We know she can do it."

Emma Williams MBE is the CEO and Founder of Matthew's Friends, a Ketogenic Dietary Therapies Charity.

Emma said: "The Ketogenic Diet is really the only treatment there is for Glut 1 DS and sadly there are still patients in the UK that have been diagnosed with Glut 1 DS that are then put on a long waiting list for the treatment - this is not acceptable as there should be no waiting list for these patients.

"The longer they are without treatment the longer their brains are being starved and the more damage can be done.

"Fields' story just highlights the difference the correct treatment can make to a person and the Ketogenic Diet can work wonders in these patients and those with drug resistant epilepsy."